Thursday, May 31, 2012

20

May 31, 1992
May 31, 2012  



I hope we're lucky enough to have twenty or forty more. 

Monday, May 21, 2012

dbw day 7 - we could be heroes

Before I get to today's (yesterday's) prompt, here's an update on Saturday's post. After swagging pretty much all day long (hotel breakfast, tailgating, restaurant dinner) when it was time to go to bed on Saturday, L was 79 with 1.4 units on board. Since she had played two very physically demanding soccer games that day, we gave her a cookie (22 cho) and a brownie (23 cho) with no insulin coverage. At 1am she was 175, so I have her a half correction (.2 units instead of the .4 calculated by her pump). At 4am she was 115, so I did nothing (besides smile and fall back to sleep). When she woke up at 8:20 am to take on her second day in the soccer tournament she was her favorite number (since it's touted by the meter advertising companies as the "perfect" number): 104.


I love how in this photo, all the characters on her t-shirt seem to be reacting to her number. Dr. Horrible is all GRR ARGH, FOILED AGAIN and Captain Hammer and Penny are all HUZZAH! We decided that Dr. Horrible was playing the part of Diabetes/High Glucose in this instance. Did you know he has a PhD in Horribleness?

After as close to a perfect start as that was, would you like to hear how the rest of our day went? Why not! As we were checking out of our hotel room, John made a last-minute stop in the bathroom, where he discovered the insulin bottle chilling in our recently moistened Frio pack. We almost forgot the insulin again! Lol/yikes!

At the end of the tournament, L's team had won 1 of their 3 games and came in 3rd out of 6 teams in their division. More importantly, the girls had a super fun time. We stopped at Ikea on our way home and after getting our Swedish shop on, I suggested that L check her BG, since who knows what was going on after all that crazy activity from the weekend and sitting in the car for so long. "Uh, I think I'd better check again. It says 512, but that can't be right." And then, "The second check says 514." Ohhhhkay. I guessed that the insulin in her pump was skunky from being in the hot hot heat of the soccer fields for two days straight, so we did what came naturally: a reservoir change in the Ikea parking lot. Good thing we had that extra bottle of insulin along. An hour and a half later we were home and she was down to 180, phew.  /And thus ends the post-script to Saturday's post.

As for the final prompt of Diabetes Blog Week: Let’s end our week on a high note and blog about our “Diabetes Hero”.  It can be anyone you’d like to recognize or admire, someone you know personally or not, someone with diabetes or maybe a Type 3.

Well. Honestly, the first person that popped into my mind was my kid. I mean. Obvs. But I had a conversation with her a while ago in which she told me straight out that she hates when people (well-meaning family members) tell her how brave she is, and how proud they are of how well she deals with diabetes, and oh they're just so proud of what a brave little toaster she is yadda yadda yadda and I'm pretty sure that using the word "hero" to describe her would fall into the same category of making her feel really uneasy. So instead how about this. Here is one definition listed online:
hero (in the homeric period): a warrior-chieftain of special strength, courage, or ability

I gotta say, I think ALL of us who deal with diabetes are, at times, warriors of special strength, courage, or ability. And if I didn't think that before, I definitely do now, after spending the last week reading hundreds of d-blog posts. So thanks to everyone who participated in Diabetes Blog Week for sharing and inspiring. And thanks to all those who read and commented on my posts. But most especially, thanks again to Karen at Bitter~Sweet for bringing the community together to share their every day moments of heroism, large and small, even if they didn't realize that's what they were doing.

Saturday, May 19, 2012

dbw day 6 - picture this

Today's Prompt: With a nod to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures.

We're spending the weekend in a town a few hours north of where we live attending a soccer tournament. Here's what our day looked like.

We always pack backups of our diabetes supplies. And backups of our backups. Hilariously, we forgot to get the extra insulin out of the fridge when we left town yesterday. Luckily, another soccer mom that lives in our neighborhood was driving up this morning, so we asked her to stop by our house and pick it up on her way here today. I actually found it strangely comforting that we left the insulin behind. It makes me feel like diabetes is just along for the ride, and we can forget about it for a moment just as easily as we might forget to pack our chairs (which we also did). Go us!



Free pancake breakfast anyone? Nothing like starting the day off with a bit of a SWAG (it was thinner than the ones we make at home, so we guessed 19 carbs). L asked a hotel employee if they had any sugar-free syrup, and I was sure he'd say no, but they had some in a cabinet under the pancake maker. Score!


8:30 am and ready to hit the field for the first of three games this weekend.


 
In between games we had a cook out and snapped some team photos.


 
We brought brownies and I cut them into proper serving sizes and noted the carb info.


As we were leaving, we saw this on the back of someone else's minivan. It made me smile to think there might be another member of our 'club' out there on the field somewhere. In fact, with 299 other teams at the tournament this weekend, there's probably more than one.

: ( :

Friday, May 18, 2012

dbw day 5 - know this

Today's topic: “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”.  Let’s do a little advocating and post what we wish people knew about diabetes.  

So I asked my kid this question, and she had two answers.

1) You don't have to be fat to have diabetes.

2) No, diabetes isn't "fun" and I don't feel "lucky".

Apparently these are two things that other kids have said to her on multiple occasions. In the first example, she told me that more than one time, with a couple of different kids, when she shared that she has diabetes, they responded, "But you're not fat!" I can't blame these kids, because before L was diagnosed, I was just as misinformed. But it's still annoying.

As for the second example, sometimes when she's playing sports with kids who haven't been around long enough to see her checking BGs and injecting insulin, if they see her eating some Skittles in the middle of a game they'll say "OMG YOU'RE SO LUCKY! I WISH I HAD DIABETES, THEN I COULD EAT CANDY WHENEVER I WANTED".

Whenever these comments are made, I know L does her best not to roll her eyes and tries to explain things without looking like she's in a rage comic, but I can only imagine how frustrating it is to hear these comments not just once, but multiple times. Here's a graphic she recently made.


Coping through memes. She's well on her way to being a full-fledged member of the DOC.

Thursday, May 17, 2012

dbw day 4 - what if

Today's prompt: Tell us what your Fantasy Diabetes Device would be?  Think of your dream blood glucose checker, delivery system for insulin or other meds, magic carb counter, etc etc etc.  The sky is the limit – what would you love to see?

I asked the kid if she could think of anything for this prompt and she said 'yeah, just not right now', so maybe down the line we'll have a guest post from her addressing this topic. In the meantime, you're stuck with me. So.

What if there was a way for newly diagnosed families to find other people that have been where they are, to help them start their journey on the right foot.

What if there was a place to go in case of a middle of the night diabetes debacle to find a bit of advice or even just a "me too, hang in there pal" to help you get through.

How about a way for teens to meet other teens, so they could share parental horror stories and offer support to one another.

Imagine if there was somewhere to go if you needed to laugh at the ridiculousness of life with diabetes.
 
What if someone inspired a whole bunch of people to share their unique viewpoints on a variety of topics, to offer the opportunity to make more connections.

And what if there was a time and place that gave you a chance to meet up with some of the people who have made your road a little easier to travel.

That would be so frickin' rad.

Wednesday, May 16, 2012

dbw day 3 - room for improvement

Today's prompt is: We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!

Nothing. I'm perfect. The end.


...


...


...


Are you kidding me? I mean, have you SEEN the name of my blog? HELLO!

But seriously folks, let's talk about basal testing. We've never done it. Why? Well. Because our doctors have never asked us to. And because it seems super complicated and annoying. I mean, check this out:

Image Credit: Gary Scheiner / diaTribe

What the what. I mean, I understand that you're not meant to do all 4 types of basal testing in one 24 hour period, but still. Even taken in 12 hour chunks, it still seems like a huge pain in the gluteus maximus. And fingertips! So, what say you DOC? Got any tips or tricks to make it more manageable? Remember, we're talking about a 12 year old who loves to get her snack on. Anyone? Frye?

















Tuesday, May 15, 2012

dbw day 2 - one great thing

Today's prompt is: Tell us about just one diabetes thing you (or your loved one) does spectacularly!  Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes.  Nothing is too big or too small to celebrate doing well! 

So, my kid has this thing called "post-exercise delayed hypoglycemia", which is just a complicated way of saying her shit drops low overnight after a day of a lot of activity. It took us a while to figure this out. We expected her BG to drop during (and in the hours immediately after) exercising, but we didn't realize it could extend several hours after the fact, which typically means overnight. Awesome.

Once we realized this was an issue, we backed way off on how much insulin we gave her in the hours after a lot of exercise (soccer game, marathon trampoline session, etc). But that nearly always meant super high BGs overnight. Maneuvering her post-activity insulin needs is much more nuanced than we realized but recently, L has become a total diabadass at it.


She's been playing soccer since she was 4 years old and the first question she asked the doctors in the hospital after diagnosis was "will I still be able to play soccer?". A week and a half later she was back at practice, while I sat on the sidelines clutching an insulin pen and skittles to my chest like a life preserver. Here we are two and a half years later, and she has become so skilled at managing her BGs after intense exercise that she makes all her own food/insulin decisions now, with much greater success than John and I ever had. 

I've asked her how she is able to nail it almost every time, like is there some sort of mathematical equation I can utilize to help me figure it out? But no, there are too many variables, some of which come from just being in tune with her own body and just having a couple of years of experience under her belt, I guess.The best word I can think of to describe it is finesse. Finesse: skill in handing a difficult or highly sensitive situation; adroit and artful management.
  
My kid: nailing her post-exercise delayed hypoglycemia with finesse.

Monday, May 14, 2012

diabetes blog week - day 1: find a friend

Big ups to Karen at Bitter~Sweet for starting Diabetes Blog Week 3 years ago. This is my second year participating, and I'm looking forward to all y'alls posts. Let's get started.

Today's prompt is: Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!!  Let’s all find a new friend today!

ONLY ONE? Unpossible. Here are my faves, in the order they appear in my Google Reader:

+ Carey at dLife
At my house, we call him "The Dude Carey" so as not to confuse him with the other Kerri. He weaves entertaining tales of his family's life with diabetes, mostly featuring his 9 yo son Charlie (dx 2003).  He's funny as hell and has great taste in music. If you dig darkly comic stories with a gooey soft center, Carey's yer man.

+ Joanne at Death of a Pancreas
You guys know that animated video illustrating what NOT to say to parents of kids with diabetes? I LITERALLY quote the part about poison + cookies every time someone asks if my kid can eat that. Joanne was inspired to create that video a year and a half ago and since then I've seen it pop up all over the DOC, from #dsma chats to blog comments and Facebook statuses. Check out her blog for her special brand of Canadian sarcasm and pics of her beautiful kids, including her 4.5 yo daughter Elise (dx 2008).

+ Jules at muffinmoon
I usually find myself smiling while reading a post from Jules, which invariably features stories about her 6 yo son Frank (dx 2008), with special appearances by knitting, cooking, seaside caravan trips, photography projects, and basically all things charming and British. Each post is like a snapshot of her peaceful and creative life and one more than one occasion I've thought: I want to go to there.

+ Meri at Our Diabetic Life
The odds are slim to none that someone visiting my blog wouldn't already be a faithful reader of Meri's as well. But just in case...she and her husband are raising four sons, three of whom have type 1 diabetes. They meet life's challenges with humor, faith and the support of their community, and I have personally benefited from Meri's generosity of time and spirit. Oh yeah, and they also have an awesome diabetes alert dog. How cool is that?

+ Lorraine at This is Caleb
Lorraine's blog does a great job of balancing posts about her family's experience with diabetes from her perspective, as well as first-person accounts from her 8 yo son Caleb (dx 2007). She's also posted a lot of infotaining videos featuring Caleb over the years that really helped my family during the first few months after L's diagnosis.

+ Reyna at Beta Buddies
Reyna's got a knack for storytelling that is difficult to describe. Her inimitable voice comes through loud and clear in all of her posts, whether she's talking about her 9 yo son Joe (dx 2006), or the other members of her family. She's a tremendous advocate in her day-to-day life and if there was an award for Best Mascara, she would win it every time.

+ Amy at wait for it
I never know what I'm gonna get when I see a new post from Amy. Will it be a story about her boxing training? Will she be describing a personal experience about the transformative power of theatre? Perhaps she'll be sharing photos of one of the many creepy crawly critters she welcomes into her home.  Or it might be something about her family, including her 8 yo son Theo (dx 2010). Whatever the topic, her posts always leave me with something to think about.

+ Amy at Type 1 Today
Music-lovin' d-mom who has a knack for tying the perfect song into whatever experience she and her family, including her 14 yo son Matt (dx 2009), are going through. And if you know me, you know how important music is to my daily life, so it's easy to see why I'm down with her blog.

+ Steve at Without Envy
You guys, Steve is like, a published author and shit. That means he makes words real good. His 10 yo daughter Lia was diagnosed just a few months after my own daughter (2009), so reading about how he and his family are dealing with things along a similar timeline to my own family's has been unexpectedly comforting. Also, homeboy knows his way around a turn of phrase. Srsly.

+ Kristin at Luke's D Day
Kristin has been in the D biz for almost exactly the same amount of time as me, and she was the first person to ever comment on my blog. She's spent the last couple of years doing some serious advocating for her 3 yo son Luke (dx 2009). She blogs about her efforts to raise awareness and encourage positive legislation in her home state of Washington, as well as the DC version. She also posts awesome vacation pics of her family, featuring her very sassy hairdo.

+ Zakary at Raising Colorado
11 yo daughter Zoe (dx 2010), squirrels, photographs, asians, colorado, swearing, hijinx, hilarity

+ Katy at Bigfoot Child Have Diabetes
A couple of weeks ago, Kerri posted a link to what I call The Bigfoot Blog, and I sat unmoving on my couch for the next few hours mainlining every single post, in reverse chronological order. My surprised barks of laughter echoed off the walls of my empty house, since my family was at soccer practice and thereby not in need of my attention (luckily for everyone involved). If that's not enough of an endorsement for you, how about this one: Katy refers to her 8 yo son (dx 2011) by the nickname of 'Bubs'. Because that's the name of the recovering heroin addict on the critically-acclaimed television program called 'The Wire'. ALL ON ACCOUNT OF THE NEEDLES, GET IT? Also, she created a tag for posts mentioning the 'Portlandia Food Allergy Pride Parade', so. That should tell you all you need to know to determine whether or not her blog is your cup of tea (so delicious coconut milk optional).

Have you guys noticed a common thread between all of these blogs? They're all written by parents of kids with diabetes. You might think that means I don't read any other types of blogs in the DOC. Oh contrayer moan frare (I took Spanish in school). But all the adult PWD blogs I enjoy seem so widely read, I would be surprised if you'd not already heard of them. However, I'd feel remiss if I didn't at least give them a little shoutout here at the end. So here are some more linkies to check out, just in case your RSS feed feels a little lonely: George, Ginger, Haidee, Jacquie, Jess, Kerri, Kim, Lee Ann, Martin, Mike, Sara, Scott, Scott, and Simon.

Happy Reading! :D

Wednesday, May 2, 2012

photo + explanation wednesday

Last night we had dinner from Noodles & Company. The kid likes it because it's delish and I like it because their carb info is easily accessible (also, delish). We ordered online and there was an option to tag each meal with a different name. The kid asked if I would use 'Luna Lovegood' for her meal, so I did. Then I added other Potteriffic names for mine and John's orders. Much to L's delight, this is what greeted us when we unpacked our dinner. She said, "THAT JUST MADE MY WEEK!" Then she snapped this photo (finger included) and promptly made it her computer's desktop background.


Sometimes it's the little things that bring so much joy. Happy Wednesday, y'all. :)